We Made A Promise We Swore We’d Always Remember, No Retreat Baby, No Surrender

A lot of good stuff has happened since my last update. Tuesday was 7 months post surgery.  Twelve weeks post chemo.  6 weeks post radiation.  But who’s counting?  My surgical follow-up appointment showed that everything looks good, I’m clear on that front until April 2018. I made sure to have the follow-up mammography and sonogram scheduled now.

img_0600 It’s five years until I’m considered “in remission” so that’s the best news I can hope for in that department.  I don’t want to rush the next five years but then again . . .

I’m almost three weeks into a new journey — I agreed to participate in a clinical trial for a drug that shows promise in preventing the return of cancer in women with AR(+) triple negative breast cancer, and that would be me.

img_0667
Yes, I Take My Pills In A Shot Glass!

Enzalutamide has already been FDA approved for use by men with metastatic prostate cancer, and studies in women with metastatic AR(+) triple negative breast cancer have been very positive so they are now expanding to women with cancer that is not metastatic. Yet.  And I feel I have to keep that option open since there are no guarantees and I don’t want to take anything for granted. No, I’m not being negative — quite the opposite actually. But I also need to be realistic and accept as best I can that anything is possible in the future. And that is why I’ve agreed to the study — I want to feel that I’ve done everything possible to prevent this from coming back. And if it does come back — well . . . I don’t want any regrets about roads not taken.  I’ve felt no effects from the drug, yet.  Fingers crossed for the days ahead.  And I’m still on drugs, for at least a year.  From the woman who doesn’t even like to take an aspirin.  But, I’m grateful for the monthly in-depth follow-up appointments that are part of the study.  I’m still scared of what the future holds, I don’t dwell on it and it doesn’t stop me.  It actually motivates me to make the best use of every moment that I have.  There is an IRONMAN finish line in my future in 2018, I have not doubt about that.

An excerpt I read recently online:

“I love it,” she stated with the enthusiasm of an eight-year-old having just been presented with a new puppy.

“Mrs. Jones, you haven’t seen the room …. just wait.”

“That doesn’t have anything to do with it,” she replied. “Happiness is something you decide on ahead of time. Whether I like my room or not doesn’t depend on how the furniture is arranged, it’s how I arrange my mind. I already decided to love it. It’s a decision I make every morning when I wake up. I have a choice;

“I can spend the day in bed recounting the difficulty I have with the parts of my body that no longer work, or get out of bed and be thankful for the ones that do. Each day is a gift, and as long as my eyes open I’ll focus on the new day and all the happy memories I’ve stored away, just for this time in my life.”

She went on to explain, “Old age is like a bank account, you withdraw from what you’ve put in. So, my advice to you would be to deposit a lot of happiness in the bank account of memories. Thank you for your part in filling my Memory bank. I am still depositing.”

And with a smile, she said: “Remember the five simple rules to be happy:

1. Free your heart from hatred.

2. Free your mind from worries.

3. Live simply.

4. Give more.

5. Expect less, & enjoy every moment.”

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