I’m on a couple of sub-committees as part of the Women for Tri Board, we often refer to “GSD”. (Get shit done!) Well, it’s a good thing I’m good at it because yesterday’s 4:00 PM phone call from Memorial Sloan Kettering (from now on referred to as MSK) to set up my genetic counseling appointment certainly took some quick action on my part to make it happen and get results before my surgery. I have a pretty booked schedule between now and leaving for St. John’s and then my surgery, and I didn’t factor in another trip to NYC.
MSK: “We are calling you to set up your appointment to discuss your genetic testing”
Me: “Okay, can you do it when I come into NYC on April 6 for my pre-op stuff?”
MSK: “Sure, but it takes about two weeks to get the results.”
Me: “Okay, so let’s schedule it for April 6.”
And I continued with my pre-prom pedicure appointment with my niece.
But, then I started thinking about. And made a quick phone call back to MSK.
Me: “So, if I wait to do the testing until the day before my surgery I won’t have the opportunity to make a decision about what type of surgery I have. And if it comes back that I have the “gene” and would then decide to get a double mastectomy it would mean a second surgery.”
Me: “Okay, can I come in tomorrow?”
So there you go, everything else I had planned for today out the window.
Got home last night and found an awesome hoodie and note on my front porch. I followed Daphne’s journey and rejoiced in her remission. She was diagnosed at 12 years old with Hodgkin’s Lymphoma Stage 2 A. Treated at CHOP, chemo and radiation @ U PENN. In remission since November of 2016. She’s now in high school. If she did it I can do this too!
One priority I’m not letting go of is my morning workouts. My friend Ben is still training for IRONMAN Lake Placid so we met at 7 AM for his 2,500 yard swim workout. I still don’t swim like someone with cancer. That day will come soon enough
I will keep the long version of the genetic counseling and testing to myself for the moment but it’s something I’m glad I’m able to do, not just for myself but for my daughter and my nieces and their future health I didn’t really have many questions until I have results. I did leave with information to read and some resources other than “Dr. Google”.
My laugh out loud moment for today is courtesy of my long time friend and my coach for many years, Brian Shea: “I heard some news today about this friend of mine w/ a little fight on her hands. So I say… ‘anyone who’s spent a night in the SkyTop Lodge, can beat pretty much anything’ 😜”